The serious neurological condition Myalgic Encephalomylitis (ME) will sadly be all too familiar to some of your readers.
At least 20,000 children and adults in Scotland live with ME, also diagnosed as chronic fatigue syndrome (CFS or ME/CFS).
ME is a long-term (chronic), fluctuating, neurological condition that causes symptoms affecting many body systems, more commonly the nervous and immune systems.
Many face barriers in accessing health and social care services that meet their needs, and some professionals still don’t understand the impact of ME and its symptoms.
UK charity Action for ME is trying to change this by offering people with ME across Scotland one-to-one advocacy, via phone and email, to help them be heard, understand their rights and access support.
We want to expand this much-needed service, and are seeking enthusiastic volunteers in Scotland and The Borders who can make the most of our online advocate training programme to develop their skills, gain valuable experience, and help improve the lives of vulnerable people with ME, all from home.
Anyone who is interested in finding out more can call, email or visit our website — we would love to hear from good listeners who can spare two hours a week.
Alice Cranston
Advocacy coordinator, Action for ME
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