A FILM telling the story of two children from Cartmel suffering from a rare genetic condition for which there is no cure has reached over 130,000 views.

BBC's Children in Need told the story of Joe and Connie Elson, two children who have Metachromatic Leukodystroph (MLD).

The disorder causes progressive deterioration of intellectual functions and motor skills, leaving people paralysed who are affected.

Connie was diagnosed with MLD when she was just five-years-old.

The condition has left her unable to walk or talk.

Two weeks after Connie was diagnosed, it was discovered that brother Joe also had MLD.

He has not yet started to show any symptoms of the disease.

Joe was able to undergo a clinical trial which has stopped MLD from progressing.

Children who are diagnosed with the disorder rarely live past their teenage years.

Nicola Elson, Joe and Connie's mum, set up The Butterfly Hugs group alongside friends Rachel Pocklington and Sian Hunter.

The charity aims to help families of children who need practical help and support.

Nicola hopes the film raises awareness and funds for Sunbeams Music Trust in Penrith and other organisations families like the Elson's rely on.

She said: "It is good that the film will raise awareness of the disorder and it will make people realise how horrible it is.

"I am very pleased that the video has received so many views because more people will know about MLD and hopefully donate money."

Nicola added: "We wanted to do the film to raise as much money as possible for charities that have helped us.

"Sunbeams is an amazing place, it's like a party once a month.

"It is huge and a lifeline for our family."

Butterfly Hugs was started as a one-off family day and music festival organised by Rachel and Sian to help Nicola, father Ian, Connie and Joe.

The first ‘Joe and Connie Calling’ event raised £13,000 and paid for a special orthopaedic bed and ongoing physiotherapy for Connie.

The money also helps pay for counselling sessions for Joe.

To find out more about the charity or to donate, visit www.butterflyhugs.co.uk.